Self-Care for Caregivers of Children with Illness

Being a caregiver for a child with a serious illness is a challenging and emotional undertaking. As you navigate these difficult circumstances, remember to take time for yourself and look after your own emotional and physical well-being.

Take time for yourself. It’s good to take breaks and step away from your role as a caregiver. Give yourself time to collect your thoughts with a walk through the park, or relax with another activity — it’s important to recharge and give yourself space.

Remember that rest and sleep are important. As you balance your role as caregiver with your other obligations, some things may not get done — and that’s OK. Don’t be afraid to prioritize rest. Your care team can also help you limit visitors when needed.

Have fun with your family. When a child has a life-limiting illness, it can be difficult for the whole family. As much as possible, try to maintain your family routines, whether it’s a movie night or a meal together. Continuing to share these types of family moments can be beneficial for everyone.

Don’t be afraid to accept help. During this time, you may have little energy for outside relationships, but don’t be afraid to accept or ask for help. One option is to request assistance with household chores like preparing meals. This can give you time to rest and take care of yourself. 

Find creative outlets. Whether it’s drawing, knitting, or writing, your hobbies can be a great way to help you express your creativity while also remaining close to your loved one. 

Give yourself grace. Taking care of yourself while you’re taking care of a loved one can be a difficult task. Remember that each person’s experience as a caretaker is different, and there’s no right or wrong way to express your feelings. 

Agape Care is focused on providing exceptional care and love to our patients and families, and we offer emotional, physical, and spiritual support through a variety of services. 

Please contact us today to learn more about Hands of Hope, our pediatric care program that offers both palliative and concurrent care.